Why a TikToker is Documenting Your Psoriasis Journey Online

Why a TikToker is Documenting Your Psoriasis Journey Online

Rosie Daniels is documenting her psoriasis journey online.  (Photo: Rosie Daniels/TikTok)

Rosie Daniels is documenting her psoriasis journey online. (Photo: Rosie Daniels/TikTok)

SKIM founder Kim Kardashian has been open about her psoriasis journey for years, often sharing photos of her skin during crises on social media. The common autoimmune disorder causes the body to produce new skin cells in days instead of the typical cycle that takes weeks, resulting in dry, flaky flakes.

Kardashian even attributed a recent flare-up of psoriasis to a diet change she made in her famous attempt to fit into Marilyn Monroe’s iconic dress for the 2022 Met Gala.

But multi-hyphenated reality stars aren’t the only ones dealing with the scaly skin condition, which affects an estimated 7.5 million Americans.

TikToker and British influencer Rosie Daniels has been sharing her psoriasis journey online as a way to raise awareness of the disease.

“This is my chance to do as much as I can to try to spread the word about how common this condition is,” she told Yahoo Life.

Daniels’ TikTok, which she shares with her boyfriend Harry, has over 4 million followers and mainly features content related to couples, including trends and dances. Most people wouldn’t necessarily choose to open up about an autoimmune disorder on social media, but the decision was obvious to Daniels.

“We share a lot about our lives in general, so obviously I thought it was an important part of my life. So I’m going to share it online,” she says.

Daniels’ psoriasis flare-ups started when she was 12 years old and mostly affected her scalp. “I was actually living in Australia at the time. I started seeing some red spots on the back of my scalp,” she says. The outbreaks on her scalp continued for about seven years and then started to spread.

“When I was 19, I started getting a few different patches of psoriasis on my stomach,” says Daniels. “They were very small, literally the size of a quarter, and I didn’t really think anything about it. I kind of thought, ‘Oh, they’ll just disappear’.” But they didn’t.

Instead, she says, “They got worse and worse.” Adds Daniels: “My skin cleared up a bit over what it was, but about six months ago my skin was absolutely worse and covered about 90% of my body.”

His videos on the subject range from trying psoriasis remedies to answering frequently asked questions. A video of her boyfriend drawing petals on her psoriasis patches and turning them into “flowers” has garnered over 14 million views.

As psoriasis is an autoimmune disease with no cure, topical treatments can only control the symptoms.

“I’ve tried different diets. I’ve tried different supplements. I’ve tried Chinese herbal medicine. I’ve spent thousands and thousands of pounds trying to find different treatments that work for me and are the healthiest, but I haven’t actually found anything that 100% clears my skin,” she says. .

One of the most common questions Daniels asks is about the level of discomfort she feels with psoriasis patches, which she likens to the feeling of a severe sunburn.

“My whole body feels like it’s on fire, like it’s on fire,” she says. “To the point where sometimes I can’t get into bed at night because it hurts so much.”

Even simple tasks can be difficult during particularly bad crises. “Bending down to tie my shoes, because my skin is kind of creased, [it] it literally feels like my skin is being ripped or like someone poured acid on me and it’s burning a lot,” she says.

Showing her most vulnerable skin to an audience of over 4 million is a reasonably daunting undertaking, but Daniels says the feedback she’s received has been surprisingly positive.

“As I’ve shared this entire journey, people who have followed us from the beginning and kind of seen our journey have known me with this condition. So they’ve never questioned it and have always been there to support me,” says Daniels, who shares that he is immensely happy. grateful for the community you’ve built on TikTok.

“We’ve created such a huge audience that is literally so supportive, like I never have the words to explain how much I appreciate the support everyone online has with me.” She adds, “I never received hate because of my skin.”

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